CARDIOMYOPATHY is a heart muscle disease which can affect anyone at any time
Intro to Cardiomyopathy
Cardiomyopathy is a term used to describe a disease of the heart muscle.
By helping and supporting each other, people with cardiomyopathy can live a good and fulfilling life
Cardiomyopathy Australia New Zealand (CMANZ) is the only not-for-profit solely focused on supporting and advocating for individuals impacted by cardiomyopathy in Australia and New Zealand.
As a registered charity we provide information and support for people living with all forms of cardiomyopathy, and their families.
The aims of CMANZ are to
- Advance health in Australia and New Zealand
- Provide support, information, and advocacy for individuals impacted by cardiomyopathy including patients, families, and caregivers
- Promote knowledge and understanding of cardiomyopathy among the public, healthcare professionals, and stakeholders
- Advocate for the recognition of cardiomyopathy as a significant health concern and for improved resources for raising awareness, prevention, diagnosis, treatment, and support
- Support research initiatives aimed at advancing understanding, diagnosis, and treatment options for cardiomyopathy
- Collaborate with organisations and stakeholders to address the needs of individuals affected by cardiomyopathy
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Community Voices
Miranda’s dilated cardiomyopathy story
I was 21 when I was diagnosed with Dilated Cardiomyopathy DCM. I was breathless, was putting in fluid weight, and was struggling to walk in a flat surface. My father
Miranda’s Takotsubo cardiomyopathy story
Takotsubo Cardiomyopathy often begins with an intense emotional event but I call my experience ‘a perfect storm’. I was a single mum, working full time from home, managing an extreme
Chloe’s story
My name is Chloe, I am a 38-year-old mum, wife, step-mum, aunty, dog mum, and small business owner. When I was 27, I was diagnosed with Hypertrophic Cardiomyopathy (HCM –
Dianne’s story
Hello. My name is Dianne, and I live in Ipswich, Queensland. I was diagnosed with Idiopathic Left Ventricular Cardiomyopathy in 2018. What led to your diagnosis? What has happened since
Prevalence
1 in 500
Australians
Age Group Most Affected
72%
Aged 65+
Cardiomyopathy and heart failure
12%
Hospitalisations
Hypertrophic Cardiomyopathy Rates
17.5%
per 10,000 men
Hypertrophic Cardiomyopathy Rates
8.2%
per 10,000 women
- Prevalence. Approximately 1 in 500 Australians are estimated to have cardiomyopathy, although this is likely underdiagnosed due to early stages often being symptom-free.
- Age Group Most Affected. Around 72% of Australians living with heart failure (which includes cardiomyopathy) are aged 65 and over.
- Hospital Impact
Cardiomyopathy and heart failure together account for12% of all cardiovascular hospitalisations in Australia. - Hypertrophic Cardiomyopathy Rates
In 2021, echocardiographic features of hypertrophic cardiomyopathy were found in 17.5 per 10,000 men and 8.2 per 10,000 women in Australia.
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